Rare Disease Day

Rare Disease Day takes place on the last day of February every year, February 28 or February 29 in Leap Years—the rarest of calendar dates to underscore the nature of these diseases—to focus public attention on rare diseases as a public health concern. This day is dedicated to raising awareness about rare diseases and their impact on patients’ lives.

Established in 2008, Rare Disease Day aims to increase general knowledge about rare diseases and advocate for more research and better access to treatment and care. It’s a day of solidarity for the millions of people worldwide affected by rare diseases, highlighting the challenges they face and the need for more comprehensive support and understanding.

For Rare Disease Day, consider these social media engagement ideas:

• Awareness Posts: Share information and statistics about rare diseases to educate your audience.
• Personal Stories: Encourage individuals affected by rare diseases to share their experiences.
• Support Initiatives: Highlight charities or research initiatives dedicated to rare diseases.
• Educational Resources: Provide links to resources for more information and support on rare diseases.

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